Let the Journey Commence!

Finally, I have decided to give blogging a whirl. So with this first post, I bid a very chipper “hello” to the blogisphere!

Whew! Now that I’ve gotten that out of the way, allow me to introduce myself a little bit ๐Ÿ™‚

My name is Alana and I’m 19 years old. I’m a very optimistic and curious person who dreams big and tries to not let my illnesses define me. I love to do anything artistic, read, enjoy nature, hang out with my lovely furbabies, send happy mail to other chronically ill youngsters, learn new hula hoop tricks (when I’m up for it), and watch Netflix (of course!). Medically, I have been chronically ill ever since I was a little girl but I was never “sick enough” to get any sort of diagnosis. This changed nearly five years ago, when I got my first diagnosis ofย Fibromyalgia. Since then, I have been diagnosed with Hashimoto’s Thyroiditis, PTSD, Lupus, IBS, GERD, Dysautonomia, and TMJ. I know it’s already more than anyone should have to deal with but I still struggle with a lot of symptoms that can’t seem to be diagnosed. My current medical team seems to suspect that I likely have Ehlers-Danlos Syndrome, SMA Syndrome, and Gastropareisis.

I’m not gonna lie. It’s been a rough last few years. I’ve had ups, downs, and times where I’ve neither felt good or bad but rather a steady “meh”. There have been times where I’ve been plagued with pain so overwhelmingly bad that I couldn’t move, times where I couldn’t eat, and other unpleasant times where I honestly had no clue as to what was going on! The last two years have been my roughest because my health has significantly dwindled in this time, leaving me housebound. I’ve had pretty great times too but they’ve been short-lived unfortunately.

My illnesses along with my curious nature have sent me on a quest to try to find answers to my health mysteries as well as to try to (not-so-simply) find ways to feel better. This quest has led me to try about a zillion different treatments over the years. I’ve gotten relief from some and a worsening of my overall state of health from others. I’ve been down the frustrating path of western medicine and more recently, I’ve been giving holistic medicine a shot. So far, this new approach to treating illness has managed to fill me with hope of having that chance of living a better quality of life and of being able to do all the things I dream of doing. I’m keeping my fingers crossed!!

I want to use this blog as a means of taking you guys on this journey with me. I want to share the successes and the failures I experience with all of these various new treatment adventures. I’m ready to try a zillion more treatments if that’s what it takes to make me feel at least a little better. I refuse to accept that this is what the rest of my life is bound to look like at 19 years old.ย 

I also want to use blogging as a platform to help spread awareness regarding my various illnesses and to get my voice out there as a representative of the chronically ill community. There’s so much to be said and I’m supremely excited to be able to say it!

I can’t wait to start this journey with you all.

Feel free to introduce yourselves in the comments below!

I send all of you out there strength, joy, and an overload of spoons (because you can never have too many)!

-Alana โคย 

 

 

 

 

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